Documentation

Resources

Reports, briefings, and documentation for patients, clinicians, policymakers, and anyone seeking to understand the ground truth about ME.

This resource library is under development. Items marked as available link to external authoritative sources. Additional materials including original briefings, summaries, and video content will be added as they are prepared to the standard this platform requires.

Official Guidance

Key institutional documents and clinical guidelines.

Guideline

NICE Guideline NG206

Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management (2021). The current UK clinical guidance that explicitly rejects graded exercise therapy.

Classification

WHO Classification ICD-11

Classification of ME as a neurological disease (8E49). International recognition of ME as a distinct neurological condition.

Guidance

US CDC Information

Centers for Disease Control clinical guidance on ME/CFS. American public health guidance now aligned with biomedical understanding.

Research Summaries

Accessible explanations of key scientific findings.

Coming soon

Two-Day CPET Studies

Summary of cardiopulmonary exercise testing research demonstrating objective post-exertional decline.

Coming soon

Metabolomics Overview

Key findings on metabolic abnormalities in ME patients.

Coming soon

Neuroimaging Evidence

Summary of brain imaging studies showing neuroinflammation and structural changes.

Briefing Documents

Concise materials for specific audiences.

Coming soon

Clinician Briefing

Essential information for healthcare providers encountering ME patients.

Coming soon

Policymaker Summary

Key facts and policy implications for government and institutional stakeholders.

Coming soon

Employer Guide

Understanding ME in the workplace: reasonable adjustments and support.

External Organisations

The following organisations provide support, information, and research funding for ME. This platform is independent but acknowledges their important work.

Request specific resources

If you require materials for a specific purpose — clinical education, policy briefing, media coverage — please get in touch.

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